Mixed Feeling and The New Year

As the year 2006 passes on and 2007 enters in I feel mixed emotions, I hate the thought of changing that Calendar over to a new year with the knowledge of knowing that Corbin will never be here this new year, I will never hold him, kiss him, smell that sweet smell of his, feel his arms around my neck in the year of 2007. So as this time approaches it comes with mixed feelings. As it also means one year closer to our Savior coming down from heaven and bringing the new earth and new heaven! One when I will be free from sin and free from these crazy mixed emotions that draw me away from God instead of closer to him.

The year 2006 began with wonder and joy as we watched Corbin grow and gain such amazing strength. He went from not eating and being told that he would take years to gain all that he lost in the hospital to gaining it all back in months. He was eating mostly on his own, walking and climbing as any other 18 month old would do. Just beginning to communicate with us in sign and in some words. As the year went on it became the most difficult year we have ever lived through.

Corbin entered into Jesus arms, not long after my Dad followed Corbin into Heaven’s gates. We have had months of illness here at our home. The three boys have showed the stress of losing their brother and grandfather by becoming ill. We have had all three boys have strep over five times, a tick bite, two boys with stitches, sprained wrist, a closed head injury that landed us in the ER for 12 hours, all three boys once again diagnosed with strep and mononucleosis, and then to end the year all of them contracted the flu virus. Yes, we have made so many Dr visits that it seams very cruel considering we spent the past two years surrounded by Doctors and doing all we could to keep the boys healthy for Corbin’s sake. Now we are surrounded by illness and Doctors once again.

Then to top it off, we get a new puppy. One we have been looking into getting for over a year. The boys were eagerly awaiting the return of Corbin from his final surgery so we could bring a new puppy into our home. So as we recovered we did finally bring the new puppy into our home. Yet, as it would go we would get the puppy that was very sick. She was in our home for only five days before ending up in a puppy hospital with a central line receiving medications for not only severe dehydration and a blood infection but also insulin for diabetes. Yes, our new puppy is diabetic! So after a very scary time and thoughts that the puppy was not going to make it, the puppy spent over a week and a half in the hospital we finally brought her home again. She too has many doctor vet visits and is on special food and medication to maintain her blood sugar! Yes, the year 2006 was not one that brought the easiest of times for our family!

We would not change God’s plan for our family. Even though we miss our sweet Corbin greatly and celebrating Christmas without him was very hard. I was a little sad that no one mentioned sweet Corbin Christmas day, yet he was greatly missed. Yet, we must continue to go forward and trust God’s love for us. This New Year, Corbin and Dad leave us with a gift of new memories. We are taking our family and the Lamons to Disney World. We are using the life insurance money from Corbin and the money from Dad’s estate to give the family time together to heal.

With all our love,
Prayers that the New Year is Gentler to our Family and yours,
The Grabb Family

Family Newletter

Here is a link to our family newsletter!!!! Thanks for checking in on us.

Give you an update on the puppy soon!

http://www.grabbfamily.com/2006_Christmas_Letter.pdf

Merry Christmas
Love
The Grabb Family

Our new addition

We made it through Thanksgiving. We left just the five of us and went to Williamsburg, VA.

We toured the historic areas and had a good time. The boys loved playing solder and fighting with their muskets.

We are doing a fund raiser for Save A Heart this Saturday at Travis' Car groups Christmas party. Mary Catherine came this past weekend and helped pull me off the couch and dig me out of my funk.

We are awaiting the arrival of our little girl! Yep, we are getting a new puppy! She should arrive Friday. We can't wait to bring her home. She is a havanese.

My wonderful sister is coming to help us get through Christmas. Just knowing she is going to be here is a relief.

Thanks for checking on us.

Love,

Terri

This Week

This week has been a hard one for us. It seems just when you feel things can't feel any worse it does. The tears come easily for Travis and I. We miss Corbin greatly as the holidays approach. We feel the knot in our stomach and the ache in our hearts.

How is it that a person can hurt so much and still be alive?

Terri and Family

Tick Bites and Head Injuries

Having recovered from our camping adventure and strep throat virus. We found other ways to entertain ourselves.

Travis went to Conneticut for a few days and returned Tuesday night. Wednesday we found a tick that had a rash around it on Brodie. So we had to go to the Doctor again and have it removed. He is being covered by antiobiotics due to the rash being a first symptom of Lymes.

Later that same day, Aiden built a ramp for his bike and had an accident. He was out for a few and very disoriented and confused. He could not walk or even see. So as the symptoms became worse it required a trip to the ER! So off we went to have a CAT scan. We had to stay for several hours as he was observed. Thankfully, nothing broken or bleeding in his noggin and just had swelling so only a concussion. We are now trying to keep him quiet and stop the others from wrestling around or hurting his head.

Yes, I do feel the need for a quiet hotel room with bubbles and a nice book all alone after a week like this!

Terri

What do you do????

When all three of your children have strep throat??? Of course you set up a tent in the back yard and go camping!

To keep our sanity and find a way to break the boredom in the house as we are not allowed around others we set up a tent and went camping in our back yard. As the day was nice and hot, the night turned into a wind storm with heavy downpours. Yes, we did not plan that well. We did enjoy a campfire with marshmallows, roasted hot dogs on the fire and songs. As we sat around and told our favorite memories of Corbin.

Travis, I am sure will never want to sleep in his own bed again after such a wonderful night of sleeping out doors in the rain and damp cold. It was glorious! The boys were snuggled down in their sleeping bags noticing nothing of the cold. That is except Brodie who could not sleep in his as he kept falling out of it! :) And everyone managed to stay dry except for Travis' shoes. Somehow his shoes were under the only leak in the tent and all the water poured into his shoes! Yes, it was slightly humorous to all of us. It actually saved the boys from being wet!

Hopefully soon we can again get out and about as this virus completes its course.

Take Care,
Happy Camping!!!
Terri and Family

Heart Walk Update

I wanted to give a re-cap of the Heart Walk that TenderHearts did in Memory of Corbin. They did an awesome job. We put together a short video of the day and events. It started out at 8am for Beckie. She worked so hard to put together this day for all of us. Her efforts were amazing. We arrived to find a huge banner that had the boys walking through our yard and Corbin and I’s picture on it. It was incredible. I don’t think I will ever be able to describe how loved our family felt that day. Thank you to all who came out, to the many who donated and the many who supported us.

We made shirts for the children and handed out buttons that said Fight CHD with Corbin’s picture. The weather was great, yes a little on the chilly side but wonderfully sunny. We ended the day with lunch at Brione’s Grille, with many laughs as sweet Kate Yawney named her veggies and Zachary Steele showed his amazing spunk. Then, as we felt the day couldn’t have been any better Tender Hearts presented us with a Tree of Hope. This tree had special ornaments made in memory of Corbin from the families that walked. It was the most beautiful gift we have ever received. We have it up in our dining room and may never take it down. Each ornament was selected and given with such love. Thank you so much. We love each ornament and find joy in each one that you have given us.

On one ornament had a story written on it by our good friend Diane James. She wrote exactly how we see our son’s life. No other words could say it better than hers so we wanted to share those words she wrote with you. Thank you again Diane.

“Before God formed Corbin in his mother’s womb,
He determined a specific plan and purpose for Corbin’s life.
God didn’t plan a long life for Corbin on earth,
But He gave Corbin a very big job, one only Corbin could do.
In less than two years, this little boy taught people some very big lessons.
He taught people how to care deeply for one another.
He taught people how to sacrifice for loved ones.
He taught people how to persevere.
He taught people how to find joy in pain and suffering.
He taught people where to find God and how to pray fervently to him.
He taught people around the globe how to unite in prayer.
He taught people that a man’s days are like grass
And that our only real hope is in heaven.
Corbin went to heaven before us, but those who hope in Him
Will spend eternity with Corbin when God calls us home.
And in the meantime, Corbin is basking
In the sweet presence of our Savior.
Praise be to God.”
With much love, hope and prayers,
The Grabb Family

This week

We have had an amazingly busy week!

I took the boys to Cox farm with Hope and Diane. All 10 of the kids (yes we really took 10) had a great time. Travis took the boys to the harvest carnival at chruch Tuesday. Wednesday they had their soccer tournament. They did awesome. Gunnar and Aiden's team won 2 and tied one. Brodie's team won one and tied two. Today they have co op and scare crow making for our new garden thanks to Gary (Travis Dad). Then Friday we prepare the house for company. Saturday the Heart walk, and Sunday Travis and I have box seats for the Redskins and Cowboys game. Nothing much is really going on here! :)

I have posted photos of Corbin's Monument. It was placed yesterday. It turned out well.

As I said we have the heart walk that Tender Hearts is doing in memory of Corbin this Saturday. They have done an awesome job. So far they have raised over 14,000 and have over 80 people walking.

Thanks for checking in
Terri and Crew

Corbin's favorite bear and blanket etched on the monument.  

Corbin's Monument Placed Nov 1st 2006 

My Dad

I am very sad to report that Dad passed away Sunday, October 8th at around noon. We had his funeral on Wednesday. He will be cremated and buried at the foot of Mom sometime this next week.

Needless to say we are all exhausted. I am back home now with Travis and the boys. The boys were very glad to have Mommy home.

Thank you for the prayers and support.

Terri

Update on Dad

I am in Michigan. It has been difficult at best. Dad is in critical condition. They found that Dad had a heart attack and it hit the main artery running through the heart. It was stented back open. He is on an ECMO device to maintain his heart to pump correctly. Yesterday the Doctor told us he had lost all of his left ventricle. It is no longer pumping at all and there was nothing more they can do for him. So we wait, pray and wait. Dad is aleart and awaire of his surroundings. He communicates through hand squeezes and gestures. He is being very cooperative with the nurses and so he is not completely sedated so we are able to see him awake and he is aware we are all here with him. One of the many blessings we have seen in this. Please pray that today, the Doctors will find that his left ventricle is working and that we will not have to make any difficult decisions.

All our Love,
Terri

Pray Please

Please pray for my Dad and family. My Dad is being flighted to a hospital in heart failure. He is currently intubated and still not getting enough oxygen.

Not sure when I will update again,
Leaving now for Michigan.
Terri

September 24, 2006

It has been awhile since I have updated. The boys are doing well. We have began our crazy schedule. The boys all have loved soccer. Brodie played in his first soccer game this past week. We are still working on kicking toward the correct goal. He loved making a goal unfortunately it was in the wrong net and counted against his team instead of for it. Not to worry three other boys did the same thing. Yes, this does make me question my coaching abilities. But I keep telling myself that I can not do any serious harm to 4 year olds.

Gunnar and Aiden are on the same team and are doing very well. They both scored several goals.

School is going well. Gunnar and Aiden are loving Co-op this year. They love their classes and are learning a lot. Aiden loves sign language. Gunnar's favorite class is history.

We went away for the first time this weekend as a family. It was hard but good. The boys had a great time at their GrandPap Grabb's house. The boys rode their motorcycles, went for a canoe ride, swam and rode in the mule! Yep a busy three days but a nice mini holiday for us all. Unfortunately both Gunnar and Brodie are a little under the weather, having trouble with their breathing and needing asthma treatments. Doing well despite needing the treatments.

Hope all is going well with each of you. As always we are missing Corbin but overall doing well. We are keeping our eyes on God and telling us His truths to get us through.
All our Love,
The Grabbs

This week

We are excited to say we have sold over $150.00 in bracelets and necklaces for CHD research and families. The boys love sealing each package. Sometimes so fast the notes can't even make it in. They have also been mailing off their Lovies as well.

All three started Soccer and Awana's this past wednesday. They were a little unsure of awana's but took right to soccer. Aiden is doing much better than Gunnar dealing with Corbin's loss. I think that is because he will talk about it to ANYONE! In the checkout line he will tell the clerk or bagger, his teachers in Awana, strangers standing in line next to him. He loves to talk about his brother and tell people that Corbin is in Heaven. We are not going to stop him from this or tell him that it makes people VERY uncomfortable because I would rather let him heal and that he is. Gunnar will not discuss it. He gets upset when you mention Corbin in anyway. So I am looking at ways to help him heal. Gunnar is also sick. He is running a fever and has flu symptoms this past few days.

We are working on the American Heart Walk in the DC area. We are overwhelmed by the responses we are getting. We have families traveling from all over coming to join us. Still amazed at the love we are shown by God.

Well thats all for now we will update again another time,
Terri and Crew

Two Months

Yes, it really has been two whole months since Corbin joined Jesus in heaven. Its hard to believe we have made it through two months without him with us here.

We are getting by. Travis has been staying busy with his Auto Cross Racing. He actually won a trophy! Gunnar and Aiden have begun home school. They start a weekly co op class here soon, that I am volunteering to serve at. All three boys will begin soccer on Wednesdays. I am coaching Brodie's team. They also begin Awana's next week. So we will be busy with their school activities. I am staying busy by painting our home and yard work. Something that really needed to be done but never was able to get to.

We are doing a few things to honor Corbin's strength and courage during his fight against CHD. We are making bracelets and necklaces that the boys refer to Corbin's Heart. They are simple with just a leather band and a heart pendant. We will be selling them on our family website to raise money for CHD and families. We are also walking in the American Heart Walk this November 4th in Washington DC. The local heart group here in our area who has supported and cared for our family is honoring Corbin by walking in his memory this year.

The boys are still making Corbin's Lovies that they are dropping off at the hospitals for the babies. Something they enjoy making and doing to bring other babies comfort too.

So we are staying busy and fully relying on God to bring us through the hardest time we have ever faced.

Love,
Terri and Family

Sorry this would help:

www.grabbfamily.com
The information is under Fundraising

Cobra Club Teammates Shine At Summer Sizzler Autocross

WILEY FORD, WV � Virginian Travis Grabb drove his way into the spotlight at the National Road Autosport Summer Sizzler Autocross, fourth leg the 2006 Miller Lite Cumberland Airport Autocross Series.

The sports car weekend began with a special Friday night Devil's Duel Shoot Out between Steel Town Corvette and Capital Area Cobra Club. Led by Pittsburgher Rob Harris, the bow-tie brigade captured the evening's club contest, but Grabb got hot in his Factory Five Cobra during the Eliminator Bracket and won a coveted National Road "Iceburg Trophy" as the King of The Hill eliminator.

Saturday's sold-out autocross featured a tight battle for Fast Time of the Day (FTD) with the Top Five separated by less than nine-tenths of a second. The Cumberland-based Reynards of John Felten and Greg Honeycutt claimed first and second. Third place went to the Porsche RSR of Bob Williams, Clinton, VA. Grabb showed that his Friday results were not a fluke, flying into fourth, .151 seconds ahead of crowd favorite Dennis Howard (Eldersburg, MD) and his yellow Porsche 996 TT.

As Sunday dawned, Wade Chamberlain had little to show for a weekend in which he was consistently knocking on the door - having the fastest car all night at the Devil's Duel only to spin in the finals of the Eliminator Bracket, and setting the fastest time on two different runs on Saturday, only to clip cones on both. He finally broke through to win FTD on Sunday, holding off the flying Feltens in second and third. DC area SCCA standout Brian Hair was fourth in his ASP BMW M-Coupe. Bob Williams made it a Top Five double for the weekend, edging out Howard.

Double winners in contested classes on Saturday and Sunday included Howard (SS Porsche), Alan Pozner (DS Acura), Andy Lindner (GS Dodge), Rob Robeson (HS Dodge), Wood Hair (CSP BMW), Tim Eisel (EM Porsche), Karl Loper (SM Camaro) and Bob Williams (SM2 Porsche).

Local contested class winners included Steve Hotchkiss (Saturday AS Corvette), Pete Harrison (Sunday AS Honda), Bill Gearghty (Saturday BS Porsche), Meg Ellis (Sunday ES Mazda), Bill Nyga (Saturday BSP Corvette), Kenn Nyga (Sunday ESP Pontiac), Fred Pfeiffer (Saturday DM Porsche), Sean Pfeiffer (Sunday DM Porsche) and Jim Shultz (STT BMW),

Other local drivers in the Saturday Top 25 included Tink Phillips (BP Daytona) 8th, Loper 11th, Steve Wilson (ASP Porsche) 15th, Hotchkiss 17th, Ken Bane (SM Ford) 23rd and Harrison 25th. Sunday local Top 25 drivers included Loper 11th, Phillips 16th, Bane 21st, Bill Nyga 22nd, Harrison 24th and Mark Boggs (ASP Porsche) 25th.

Complete results can be found on-line at www.nationalroadrally.com .

PHOTO CAPTION

GRABB GRABS SHOOT OUT TITLE � Travis Grabb got hot at the end of the first annual Devil's Duel Shootout between his Capital Area Cobra Club and the Steel Town Corvette Club. The Pittsburgh area Corvette team took the club title, but Grabb, shown celebrating his win with team mates, took the King Of The Hill title home to Clinton, VA.
 

Family update

Well here is what is going on in the Grabb Asylum er I mean household!

Aiden's finger - He ripped the nail off along with the roots of the nail under the skin. He also broke off a piece of the bone. So it was considered an open fracture. Well, they took cultures. Would you believe it grew fungus! So now he has an infected open fracture and has to see an orthopedic for it!

Gunnar, Aiden and Brodie are enrolled in home school soccer through a local program. I will be coaching (yes you are reading that correctly) Brodie's age level. I know many of you are finding this mighty humorous since that I have never shown any interest in any sport let alone learned how to play anything. But, I have begun reading Soccer for Dummies, and All a kid should now about Soccer.

Gunnar and Aiden are enrolled in home school co op classes through our church. They are taking history, sign language and art. I will be helping out in that program as well.

Travis did very well with the race!!! He took 1st place the first day, then the second day held fastest time for a long time. Looking forward to seeing how today goes. If he had the video camera up and running I will try to post a short clip on our homepage. Let you know when and if I can get that up.

Me just staying busy. Cleaning, cooking, feeding, and teaching! That is about it.

The Crazy Grabbs

Sadness

Today I received a phone call from a heart Mom I met while in Michigan. You could hear the tears in her voice. Well, Yesterday morning her son went to be with the Lord. He too was a fighter. He fought back with not only HLHS, severe bladder infections that led to spinal menigitis that kept him in the hospital most of his short life. He made it home only to pass away in his mothers arms. I am only certain of one thing. God's Love. Even in the midst of our darkest hours God is still wispering his love for us. His willingness to give us strength, all we have to do is turn to him.

Will do another update on the boys and stuff another time. Just doesn't seem right after learning of another little boy in Jesus' arms.

Terri

Home Again

We are home now. We arrived back home Friday night. It was a nice vacation but the boys really needed to return to get into a form of structure. They showed me in many ways we can't keep running from the memories of our home. They need to have the structure and routine so they can also begin to heal as well.

Did I make it to the hospital. Yes, I did go. No I did not go to Pod A, nor did I go to Cardiology Clinic and see any of the Doctors. I went in the middle of the night and saw only the floor nurses at night. I was going to go back the next day and see everyone during the day the Pod A, and Doctors but just couldn't go back. It was way to hard.

My sister still has many more tests to go through before they can find any answers please pray that she will have peace until all the information gets in and she can return to the doctor in September. Pray that all the tests and procedures go smoothly with no complications.

Aiden has been our little accident boy lately. He feel swinging from vines in the trees and punctured a hole in his head requiring stitches. Today he ripped the root of his fingernail and nail bed out of his finger. Yes it is painful!
Gunnar and Brodie are both doing well.

I am not going to discuss how we are grieving or healing on this site. That is something we would like to do privately.

Travis is going with his Dad soon on another race with his Cobra. He does auto cross and really enjoys it.

As for Me, I am going to take up a new hobby. I think it is going to be running! I will let you know.

Terri and family

The Drive Back

Yesterday we drove back and it was an emotional drive for me. Remembering and bitter sweet to return without our son in the car that we truly believed would be a survivor of HLHS and not a statistic. Yet, onward we drove. The boys did great. Aiden was not to sure about getting back into the car for another 6 hour drive today to get to the campsite. Gunnar and Brodie are very excited and ready to go. So onward we go to the great beyond. Blessings to all.

Terri

Yesterday

Was probably one of my harder days yet. I received Corbin's medical records from his last two days. Yes, I did read them even though I probably should not have. It did not say anything I did not already know just that It crushed me to read such medical facts about my son who was dying at the time. It brought a lot of doubts that I had to the surface. Thankfully God sent a friend to call at just the right time.

Today I am better. I have a terrible migraine from crying so much yesterday. But realize that the truth is the truth. Nothing will change Corbin's death and nothing was done wrong. Just one of those things that you pray will never happen during surgery.

Tomorrow we have to pack! I need to pack for all four of us and the car so we can leave bright and early to go camping!! I love camping. When I say that I mean camping with electricity and running water! I am not a survivalist camper, nope I am a wimpy need the comforts of home camper. Some may say that is not true camping but I say it is. Any time you don't get to sleep in your own bed and have to use a shower house to bath it is camping!

Missing Corbin ever so much but knowing I will see him again.
Later,
Terri

July 26, 2006

I have come to this page several times to write but have just logged out. Its hard to write your feelings or even to acknowledge them. Some moments are harder than others as are just some days. I never thought that we would come home without Corbin. Its really hard being in this house and not having him here with us.

Lately I have just been feeling numb and empty. Like I have nothing left to feel or even give. Sometimes, the boys even make me upset or sad because I would still be in the hospital not watching them play and laugh. Everything is a constant reminder that Corbin is gone. I anxiously await to see him again. I was told that this life is just a breath in comparison to eternity. It sure seems that someone is holding their breath on me.

That being said we are returning to Michigan exactly one month from the day Corbin died. We are renting a cabin for two weeks with my sister and then returning to Ann Arbor for the last week. During that last week my sister Sherri will be seeing a doctor and we will be delivering Corbin's 2nd birthday gifts to the hospital. We may stay and be with the Vercammen and Husted family as they have their Fontan surgery on July 16th. I am not real sure if I can go back yet but am considering it for them.

Please think of Travis as we are going to be in Michigan and him home here. He has not a single day of vacation and realizes that I need to get away.

Love,
The Grabbs

In Memory of our son Corbin Marc Grabb

This video is in memory of our son for his 2nd birthday.
July 20, 2004 - June 29, 2006

Tomorrow

As I was doing my devotional time this morning this is what I read by Spurgeon.

Tomorrow

A Christian can look forward to tomorrow with joy. Tomorrow is a happy thing. It is one stage nearer glory, one step nearer heaven, one more mile sailed across life's dangerous sea, one mile closer to home.

Tomorrow is a fresh lamp of the fulfilled promise that God has placed in His firmament. Use it as a guiding star or as a light to cheer your path. Tomorrow the Christian may rejoice. You may say that today is black, but I say that tomorrow is coming. You will mount on its wings and flee. You will leave sorrow behind.

Tomorrow, or perhaps before then, this head will wear the crown (James 1:12). This arm will wave the palm (Rev. 7:9). This lip will sing the song (Rev. 5:13). Tomorrow, this heart will be full of immortal, everlasting, eternal bliss (Rev. 21:4). Be of good cheer, fellow Christian, tomorrow can have nothing negative for you.

Surgeon pg 120 Beside Still Waters

This really spoke to me. Yes, today I am sad. I miss Corbin's very much. But what a beautiful thing God gives us Tomorrow!

Terri

How are we doing?

We miss Corbin very much. Yet we are also aware that we will see Corbin and his two sisters again. That is God's promise and gift to us through his Son's death and resurection.

That doesn't mean we aren't sad. Yet we grieve with hope. My arms ache to hold him one more time. My heart breaks at the silence that comes from his room. The tears flow as I look around at all the medical equipment that Corbin is now free from. Yes, we are sad but we also rejoice. Our son is healed. This is not how I wanted my prayers answered but I know that God knows best for us all. He uses ALL things for good!

We would like to ask for your help. We are going to be celebrating Corbin's 2nd birthday on July 20th. We are getting a large world map and would like to ask all to let us know where you live so we can mark how large of an area Corbin has touched. We thought this would be a great visual to our other son's of God's love for our family.

So please--Post a message with your state,city, or country

Thank you again for always loving our family, for always reaching out to us and your many prayers.

Please join me in praying for Jacob. His mom and I are very close and he faces the Fontan this July 13th. Care page is "jacobsheart"

Terri

Corbin Marc Grabb

On June 29th at 12:30am we said Goodbye for now to our sweet loving little boy. He was taken to heaven this morning after not recovering from his two open heart surgeries Monday and Tuesday. He suffered a massive stroke. He passed away in my arms with Dad by his side as we told him how much we loved him.

The memorial service was Monday July 3, 2006

Our church has made it available online for all that would wish to listen.

(cut and paste the following link into your browser)

http://www.sovgracefairfax.org/home/audio/2006/07/03/corbingrabb

The pastor mentions an article about infants going to heaven. You can read that article at:
http://www.sbts.edu/mohler/FidelitasRead.php?article=fidel036



Thank you for your prayers and support.

Surgical updates

Corbin made it out to Moderate care for a half hour where he aspirated and then coded. He was rushed into Pod A. They were able to get his heart beating again but were having a lot of difficulty in ventilating him. Then his heart stopped again. He was quickly placed on ECMO on April 21st. For four days Corbin bleed loosing over 400 units of blood in those four days. They were able to stop the bleeding. He had to go onto dialysis and remove a lot of access fluid. They worked hard and he was able to get off ECMO on April 30th. He was still very sick and was placed on Nitric oxyide and a lot of other blood pressure support to keep him alive. We then worked our way at getting better. On May 19th Corbin was taken off the vent. He then had surgery on May 25th to have a G/J tube placed. He ended up needing four tubes due to problems with them.

Then on June 22nd Corbin went into heart failure. He was having a lot of trouble loosing his fluid. They found that his right lung was not getting any blood flow to it and the pulminary artery needed opening again. So on Monday June 26th Corbin had a heart catherization to place a stent. Unfortunately the stent placement went wrong and he had to have open heart surgery to remove two stents lost and fix the PA.

This is the abbreviated version and more can be read on www.carepages.com under his carepage name corbingrabb.

Terri

Surgery and Post op Updates

April 21, 2006 at 08:08 AM EDT
We are commanded to "pray without ceasing" and that's just what so many of you have done for Corbin. We stand in awe of God's goodness and mercy. Even as there are complications and setbacks we marvel at the grace God pours out.

Sorry I didn't update yesterday, but Thursdays are a "rat race" here and I was waiting for the next update from Terri. Since yesterday Corbin is breathing better, his lungs are a little better and he still needs to cough to clear the right lung which is congested. He is still on high oxygen support by nasal canula. They are weaning the milrinone (cardiac output med) very slowly as his blood pressure drops (to a mean 55). His diuretcs have been changed from pump to IV and they are weaning the sedation. He's awake more, but still lethargic. Yesterday he watched some video and kept his eyes open more, and did smile when Terri signed "I love you". She still calls him "pathetic" but there are many positive signs.

They resumed feeding rice dream during the day (he only took 4 ounces) and tube feeding formula at night, but he is not tolerating food. He's on prevacid and zantac for digestion. Corbin's digestion has always been sensitive so this is not unusual and should improve as his meds are weaned and his system returns to balance. He is off TPN but still receiving lipids.

This morning they have removed his catheter, the arterial line, and the most uncomfortable chest tube! (It will be easier to hold him.) Output from the other chest tubes is very low and clear but will remain until he becomes mobile, as that is when the clearing of chest fluids will be more dramatic. They continue to wean him off the morphine and atavan sedation but he has started some tremors which may indicate withdrawal signs. He's still on sodium bicarbonate for the acidic state of his blood as well as enalapril for his heart. His core temperature is stable as his body fights hard.

Corbin is sleeping most of the time and they would like him to awaken and become more active. That would help clear his lungs and GI tract and help him regain muscle tone. Since he's now lay in bed for 9 days, it will take a while to regain strength. There is talk of moving him out of the ICU, but they are not certain whether he must go to moderate care (the step-down unit) or can go to the floor. In moderate care the parents can stay 24 hours but they may not sleep at bedside (now they leave the unit for shift change, rounds and any complications with any patient). On the floor a parent can stay in the room and sleep in the lovely recliner.

My personal prayer is that once Corbin will tolerate being held he will improve more rapidly and regain strength and digestion. Oh the power of human touch! Dr. Ohye (surgeon) is pleased with the results and my personal daily question appears to be answered -- Corbin appears able to adjust to the fontan circulation and is not expected to need a "takedown" (undoing of the surgery). Nothing is certain until he leaves the hospital. The significant concern at present seems to be that Corbin's cardiac output needs to improve.

So today we ask that you join us in continuing to "pray without ceasing" that Corbin:
continue to wean from the narcotics and regain activity and interaction;
have improved cardiac output from the right side of the heart as it works to perform "double duty";
blood pressure improve as the milrinone is weaned;
body chemistry stabilizes at acceptable levels;
be protected from infection and human error;
be able to tolerate food necessary to restore strength;
has a bed in the appropriate unit as soon as he is ready to be moved out of ICU;
and, that Terri and Travis receive the rest necessary to take over 24 hour care as soon as Corbin leaves ICU;
that they are content and at peace with Corbin's care and progress.

Each of you is a treasure of support and caring, and we thank God for your faithfulness. May God be glorified THIS day.
GrandPenny



April 19, 2006 at 10:29 PM EDT
Blessed be His Name, when I'm found in the desert place, though I walk through the wilderness, Blessed Be His Name

Corbin seems to just be worn out. This evening Terri says he looks "pathetic". They want him to awaken more, especially to be upright, move around and loosen chest congestion. He's not comfortable being held, so they have a therapy chair for him, but he just wants to sleep. What a change from the wild man in the crib yesterday! His temperature is under control and his breathing is less labored than it was this morning, but still on 3 liters Oxygen. His saturations hover around 80% and they want it up to 85%. They have started his regular pre-surgery meds, enalapril and aspirin.

Last night when he was still agitated and acting wild, he was signing "please, more, milk, mama" and every time they'd mess with him he'd say "no, 'op". (Praise God, he's "neurologically intact" even after all the trauma post-surgery!) Finally they fed him to help him calm down and he ate very well, but he's not digesting well and the dietician left without writing orders for food, so he can't be fed again until tomorrow, although the TPN and lipids have been removed. He's off the insulin and losing fluid weight. Since he's more calm (worn out) the narcotics dosages are reduced and he was only getting chloral hydrate most of the day. He's wearing a shirt now which makes him look more like himself, and his heart rate remains good both at rest and when awakening.

That's all I can remember, so it sounds like a day of rest for him.
Please pray specifically for:
T&T to be content and at peace with Corbin's care, effectively expressing their concerns and advocating for Corbin, and being heard;
Corbin to breathe deeper and stronger to reduce oxygen support and help clear congestion;
Corbin to awaken more;
Corbin to be comfortable and content;
oxygenation and blood gases to improve;
blood pressure to remain stable;
Corbin to receive the best nutrition and be able to digest well;
Corbin to be protected against infection and human error.

Thank you for all your prayers and care. T&T are so grateful for the visitors, messages, food and calls. We are grateful for the same, as well as planned and surprise meals provided, and invitations for the boys to visit friends. I don't know if Travis' shoulder is any better, but he's not complaining. My foot/ankle is no worse and the doctor provided some strategies for improvement today. I have to be able to chase these 3 little guys!

May God richly bless you and may He be Glorified THIS day,
GrandPenny



April 19, 2006 at 12:52 PM EDT
Just a quick request for prayer -- will post more later.

Corbin is struggling to maintain oxygenation and is on as much oxygen support as possible without re-inserting the ventilator. Although they let him drink 15 ounces last night, not everyone feels that's a good idea. He is running a fever being treated for now with Tylenol, and is VERY tired.

My personal thoughts are that maybe he came too far off the vent and oxygen too soon and because he has been so agitated, also has stressed his body and worn himself out. Terri will call me later to let me know how things are going and what adjustments are being made, so I'll post details tonight.

Please pray that:
Corbin will rest comfortably, relax and breathe more deeply;
secretions will loosen and congestion will clear;
fever will go away;
Corbin will be protected from infection and human error;
Corbin will regain strength and stability.

Thank you and blessings to all, until tonight . . .
GrandPenny



April 18, 2006 at 06:05 PM EDT
Thanks to Rachel and Nikki for the wonderful pineapple and fruit basket! We'll do our best to put it to good use!!!

Travis



April 18, 2006 at 04:24 PM EDT
Ask and it will be given . . . pray without ceasing . . .

The power of prayer is awesome. Just this morning we asked:
"We thank you for your prayers that hold us up every day. Please join us today in praying specifically that:
Corbin's lungs will strengthen and remain clear, making progress toward getting off of the ventilator; HE'S OFF THE VENT !!
the sedation will keep him comfortable yet be monitored closely to maintain optimum recovery; HE DOESN'T APPEAR IN PAIN
his blood pressure will continue stable and allow weaning off other medications; BP GOOD, MEDS BEING WEANED perfusion throughout his body would improve and he would become pink all over; USING ALL 4 LIMBS AND SATS AT 93%
Corbin would awaken more peacefully, calm and strong; WELL, STRONG HE IS, PEACEFUL WHEN ASLEEP

We have witnessed another miracle. Terri called to say that Corbin was so active and fitful that he was endangering himself and had dislodged his ventilator. The staff decided they'd have to re-set it anyway, so pulled it the rest of the way and he's doing fine without it! They started with 3 liters oxygen by nasal cannula but stopped down at 1/4 L and his blood gases are fine. His esophogus was so swollen that they gave him epinephrin and the strider is quite loud, but he's much more comfortable without that ventilator down his throat and he's breathing on his own! The tape has torn up his face, but that will heal.

Corbin's blood pressure is good at a mean 68, heart rate is stable at a good 145, and they moved him IMMEDIATELY into a CRIB -- no longer on the surgical bed, because he's back to his wild man actions and they fear he'll climb out. He's maxed out on the narcotics so he is not very peaceful. Best of all, he was mouthing "MOM" over the ventilator, and even though he's not fully conscious he responds to her voice and tries to talk.

Here are the latest prayer needs -- and we know to pray specifically! Yeah God! Please join us in praying that:

Corbin will have bowel sounds so feeding can be initiated;
He will continue to lose fluid weight to return to "dry weight" and be able to come off the dopamine;
cardiac output will improve and the milrinone can be reduced;
Corbin will be calm and peaceful and awaken more, depending less upon the narcotics.

We ask these things in the name of Jesus who heals, surprises and delights His children. God be glorified!

GrandPenny


April 18, 2006 at 09:57 AM EDT
Morning by Morning new Mercies we see, God's always been faithful to me! God has provided constant care for Corbin and we rejoice in His great goodness and mercy!

We have a new condition category of "stable" -- no more "critical" although he is, of course, still in the ICU. That sure makes me feel better 1000 miles away! Corbin continues to adjust to weaning of his medical support. He is off the steroid and they are weaning the insulin as his sugars levels hold. His blood pressure is still low when the epinephrine is off and having to keep him sedated keeps his blood pressure down. This creates a viscious cycle with the sedatives. He is uncomfortable and the chest tube placements are quite inconvenient. Yesterday they replaced, unclogged or adjusted tubes 7 times, each time requiring additional sedation. Corbin does not appear in real pain, but as he awakens he is fighting to remove everything, sits up, pulls up, rolls over, scoots and even uses his feet to try and move the tubes. As miserable as that is, it's a great indicator of his strength and strong will, as well as one of the best indicators of neurological condition following such a serious surgery and threatening recovery! Unfortunately then they have to start back with the morphine, atavan, versad, and chloral hydrate until he calms, and that causes his blood pressure to drop again.

They have begun reducing his oxygen support on the vent. He went from 75 to 55 yesterday and then did several half-support "sprints" to exercise his lungs. His blood gases maintained satisfactory levels so he's on his way toward getting off the ventilator some day soon, which will be the biggest hurdle of all.

His body temperature is still too cool (partly because he's in the room with a baby requiring severe cooling treatments) so he's on a heated blanket. The heavy antibiotic has been stopped, no signs of infection, and, on a lighter note, his "heart bear" that he carried with him to surgery, had HIS chest closed yesterday. Those doctors need something to lighten their day and so the heart bear had come up from surgery with Corbin with a surgical opening of HIS chest. When Terri arrived this morning, there was the bear, with a note attached that said, "chest closed after 48 hours stable". Too funny! We are thankful for lighter moments.

We thank you for your prayers that hold us up every day. Please join us today in praying specifically that:
Corbin's lungs will strengthen and remain clear, making progress toward getting off of the ventilator;
the sedation will keep him comfortable yet be monitored closely to maintain optimum recovery;
his blood pressure will continue stable and allow weaning off other medications;
perfusion throughout his body would improve and he would become pink all over;
Corbin would awaken more peacefully, calm and strong;
Travis' shoulder (old injury) would heal and pain subside so he can rest well;
GrandPenny's foot/ankle (tendonitis?) pain would subside so she can chase 3 little boys and transport 3 busy teens.

You are so special to us and we so appreciate your prayers, your caring, and all the great messages of support and encouragement. May you draw near to our great God of mercy and comfort and glorify Him THIS day.

GrandPenny



April 17, 2006 at 05:12 PM EDT
Well, this afternoon I'm savoring the words of Dr. Ohye, the surgeon, who conveyed to Terri that he thinks Corbin has "turned the corner" and although there are never any guarantees, his opinion holds weight with me!

Corbin's "numbers" are really no better, but they have weaned down the epinephrine as far as they can go. However, Corbin's blood pressure drops when they try to turn it off, so now T&T are bribing him (Gunnar's new motorcycle was mentioned) and threatening him (no, GrandPenny does NOT spank)so they are telling him to "shape up" and kick some meds.

This is a slow wean day and it is just very hard to get his body to respond to reductions in meds when they have to keep him so heavily sedated to keep him calm and comfortable.

Please pray that Corbin's care team can find a better mix of sedation to allow his body to work and get off of some support and still not be agitated.

For those who are interested, there are some photos on the family website www.GrabbFamily.com. Corbin really looks very good for post-op, once you look past the machines, tubes and wires.

Thanks again for your continued prayers for Corbin. His brothers had a great day of play with generous church friends so that GrandPenny could hold a business meeting and the rest of my family could return to work and lessons. So very much for which to be thankful. We serve a Great God!

GrandPenny


April 17, 2006 at 07:52 AM EDT
I feel like we're dancing a "two step". Two steps forward, one step back, but Corbin is still going in the right direction, with small improvements along the way.

Terri is getting better rest and sounds good. She was so thankful for her visitors yesterday and Corbin made some improvements, but overnight needed some support returned. They've added TPN and lipids (nourishment) which required the addition of Zantac. His body cools too much then fever returns periodically as meds are given and wear off, but he made it off the nitric oxide and vasopressan (sp?) last night with no change on the ventilator. He's on insulin in response to the additional steroid to keep his blood pressure up. They removed the intercardiac line (one less internal line).

Now this morning Terri found that the nitric oxide pump has not been removed from Corbin's room, meaning there's a chance he'll have to go back on, as his blood gases are not where they need to be. They had to go back on the vasopressan and increase the ventilator oxygen support a bit. His chest x-ray shows a pocket of fluid on the right side, meaning a chest tube has clogged or a 4th drainage tube may be required. The CVP (measures the pulmonary arteries pressure) is higher than they'd like since coming off the nitric oxide.

Terri and Travis have had some concerns about pain management and are asking that sedation be monitored more closely, especially as they attempt to wean meds. Blood pressure AND heart rate have remained stable and good, so weaning of bp meds may continue today. Urine output has slowed a bit, but diuretics can be adjusted for that. He's on the ventilator, 12 med pumps, 2 pump lines and 5 additional intermittent meds. Still a long way to go.

Today we pray specifically that:
Corbin will be kept comfortable and not be in pain;
his body temperature will become stable;
his blood pressure and heart rate will remain stable in good range; his urine output will increase and excess fluids eliminate;
the pulmonary arteries pressures will reduce to normal range; additional seadation and other meds can be slowly weaned away;
there be no infections;
the chest tube be unclogged and he not need a 4th one inserted;
blood gases return to good range;
there be improved oxygen perfusion to the right side;
T&T are at peace and comfortable with Corbin's care.

We praise God for the gift of rest; for wise, skilled medical staff; for family and friends who visit, pray, serve and send messages of encouragement (WOW, you all are great!); for sustaining Corbin and providing glimpses of improvement. One of the best things is that Terri continues to say "Corbin looks like himself". You heart moms all know what that means . . .

Thank you so much for your faithfulness to pray for Corbin's healing. May God be glorified THIS day in all we think, do and say.

GrandPenny



April 16, 2006 at 05:31 PM EDT
Christ the Lord is Risen today -- hallelujia!

CJ Mahaney had a wonderful teaching for us today and provided some "gold nuggets" to help me stay focused on God's goodness and mercy in our situation.

Terri reports that Corbin continues stable today with some weaning in medical support. Although they had to add hydrocortisone, with a corresponding need for insulin, his blood pressure is stable at a mean 65, he's losing fluid weight, his heart rate is high at 175 so they are not weaning epinephrine today, they keep weaning the nitric oxide in little bits and hope to have it off by evening, they've added chest percussions to clear mucous, and there has been no growth on the cultures so there is the possibiity of stopping the heavy antibiotics. Corbin remains very sick, "critical but stable", but I see many praises in even these "baby steps" forward.

God has reminded me today how he loves to please his children and give us our heart's desire. Haven't I seen that so often! We have not, because we ask not. I've watched our Pastor, Lou, pray so specifically for Corbin and then shortly hear each prayer, even what we thought impossible, be answered. So although I am uncertain today of exactly WHAT Corbin needs, I purpose to pray specifically for each need, God knows every need, despite how unlikely it may appear to my brain. I pray in faith, that God may surprise and delight his children and His Name be glorified. For today, I know that Corbin's heart rate needs to come down, perfusion to the right side of his body needs to improve, his blood sugar needs to stabilize, he needs to be free of infection and working toward weaning off the ventilator (in general) along with less medication support. I ask you to continue your faithful prayers for Corbin and to join me in praying for these specific needs and those I hope to bring you tomorrow, sharing in the privilege of praying and the mercies of God's grace.

Blessed Easter -- the greatest miracle has already happened, yet God shows us mercies anew day by day.

GrandPenny



April 15, 2006 at 10:45 PM EDT
He is Risen, Indeed!

As we approach Easter and celebrate the Risen Christ, I realize that I will always remember this particular Easter miracle. How kind of God to give us such immediate, tangible answers to our prayers for Corbin. Tonight there is no real "new"s, but that is probably the best news of all. Stable, continuing to hold good numbers and very slowly adjusting to reductions in meds and other assistance. Tomorrow they will try to wean the nitric oxide some, and we pray for continued strength, and compensation for Corbin as he adjusts to the new circulation pathways. Remember, "Corbin" means "for whom God will provide". Praise Him!

Coach, Lattany and Logan returned from Mexico and were able to speak with Terri by phone -- what gladness. And three little boys here in Va are VERY happy, also, to have them home.

Happy Easter from our family to each and every one of you. As I promised, here are some Easter EGGs (EGGs = Evidence of God's Grace).

Travis is able to be with Terri and Corbin in Michigan without employment worries because of the "grace" poured out through his employer, United Rentals.

T&T have the comfort and security of lodging and familiar accomodations because of the diligence of U Mich staff and the generousity of the Ronald McDonald Foundation and all who contribute.

Nurses in Pod A were treated to homemade fudge today when Terri shared her special "comfort food" brought all the way from Virginia.

Skilled, caring surgeons apply their gifts to preserve the lives of babies like Corbin all over this country.

Caring friends call at just the right moment, stop by to offer assistance, encouraging words, or realize that a grandmother should not be alone on her grandson's surgery day.

People we have never met cry with us, rejoice with us, pray for us.

Pastors work tirelessly and respond to every immediate need.

Children come and climb into a lap, just to share a little love at the moment it is needed most.

Never ending love and the assurance of eternity in paradise, all because of the greatest sacrifice of all.

We see these EGGs because He came to earth, shared His love, was sacrificed for our sins, once and for ALL, rose again and Reigns Eternally. Corbin has breath tonight, only because of the grace of God. We thank God that we know where we will spend eternity, and pray that it will be with each of you, because it is the FREE gift of God's grace.

Hope you find MANY Easter EGGs around you. You are precious to us.

Praying for continued progress for Corbin's recovery, for rest and peace for T&T, and for peace and contentment for each of you.

GrandPenny


April 15, 2006 at 02:23 PM EDT
What a difference 24 hours can make! Praise God for wisdom, strength, perseverence and His infinite mercy.

It appears safe to say Corbin is "stable" and moving in the right direction. I was waiting to post until the surgeon had stopped by today, but having spoken with Terri this morning and just receiving an update from Travis, there are many good indicators this afternoon. I will post again this evening and plan to share some Easter EGGs with you.

Corbin is on many meds, but no new problem areas have developed and they are able to begin slowly weaning him from the vent, nitric oxide, epinephrine and to start the milrinone to improve cardiac output. His temp and blood pressure have both normalized (indicating improved cardiac output)and are holding while meds are adjusted. He is off the paralytics and being allowed to awaken somewhat, while still heavily sedated. His fluid output is no longer just when he receives the diuretics, but he is more steadily eliminating (great sign that kidneys are functioning).

The goal for today was to let Corbin "rest", but it appears that it has been much better than that and Terri calls it a "great, stable day". They will not start weaning the blood pressure meds until the milrinone is where they want it to be, but normal bp numbers are a real blessing even with medical support.

The best part is that Terri says his color is constantly improving even in his extremities, so with better oxygen perfusion, better eliminating, stable temperature and blood pressure, Corbin is heading in the right direction! He has a very long way to go to get off of all the med support and ventilator, but we'll patiently await God's perfect timing. Best of all, T&T are getting more time with their baby.

I'll send the latest news from today before bedtime, as well as some Easter EGGs for you!

GrandPenny



April 14, 2006 at 10:35 PM EDT
I feel that I needed to get on to tell you how much we love all of you, as I finally had a moment this evening to check email messages and received over 175 messages. We are truly amazed at God's goodness and love for us. Thank you so much for all you are doing and continue to do for our family with your prayers.

Corbin is as Grand Penny says hanging in there. As of 9pm his fever has returned but they are working hard at keeping it lower. We are just praying that Corbin can stay where he is and make small steps forward.

All our Love,
Terri and Travis



April 14, 2006 at 08:56 PM EDT
Blessed be the Name of the Lord, Blessed is his Holy Name!

We are overwhelmed by your committment to pray, by the volume of messages and calls, and our God is honored and glorified by your faithfulness. His mercies today are also overwhelming. Each specific need is being met in His perfect timing.

From the day Corbin was born, we've learned "what a difference 24 hours can make", through each hospitalization and even at home. The past 24 hours have been an excellent example. There are encouraging signs of improvement and, although I cannot see Corbin, I can hear my son's voice when he calls, and know that Corbin is somewhat better.

They are confident in Dr. Ohye's assessment and "gut" feelings about Corbin's recovery. Dr. O assured them there were many steps to take to recovery before considering drastic measures. He expects to know more over the next 24 hours as Corbin "proves himself". They refer to Corbin as the "drama king" who takes drastic turns quickly.

Specifically, the wise and skilled nursing staff is tirelessly making constant adjustments to improve many aspects for Corbin. He is resting on paralytic drugs and his fever is gone; he is urinating increasing volume; the drainage tube output is decreasing but more clear; he's needed no additional blood since last night; no infections have been found to cause the fever, so an echo has been done to assess cardiac output and both the function and fenestration look ok for this stage of recovery; addition of some nitric oxide to the ventilator acted as a vasodilator and brought up Corbin's blood pressure, improving oxygen perfusion, but will require weaning over time; lowering the ventilator rate and volume has not brought a corresponding decrease in oxygenation. Terri had remarked how "grey" Corbin looked after surgery, but that is changing. His nail beds are starting to turn pink. Corbin has run about 75% oxygen saturations over the past months, but with the vent turned down to 79%, he was at 89% this evening. They are starting to allow him to awaken a little and will keep "fine tuning" meds, temperature and ventilator.

In summary, although Corbin still has a very long way to go, there are some improvements and although nitric oxide is an additional support, there really are no new problem areas this evening. We give glory to God, Great things He has done THIS day.

Please pray for improved cardiac output, body temperature and blood pressure maintenance, and Corbin's strength and comfort. We could also use prayers for accurate and compassionate communications among all staff and to T&T, to maximize trust and cooperation for Corbin's care and recovery.

We are praying for safe travel for my family returning with the Mexico missions team tomorrow. How I pray their service was helpful to the orphanage and glorified God, but how thankful I will also be to have them home with us tomorrow night. It's been a VERY long week!

May you each consider the truths of this "Good" Friday, come closer to the foot of the Cross as Easter approaches, and each day thereafter.
Thank you dear friends, family and "heart family" for your continuing prayers and care for our family. I'll continue to post as there are changes. May everyone enjoy the gift of sweet sleep tonight.

GrandPenny



April 14, 2006 at 10:58 AM EDT
Because there is God, there is HOPE.

Thank you for your prayers and for all the wonderful messages of encouragement. We have read many and are comforted to know we can go to this board and be reminded of God's goodness. We will read and re-read your kind words over the coming days.

Corbin is now considered "critically stable". The bleeding has diminished and he is no longer receiving constant blood products. Because he was so responsive to voices and stimuli, he is now on paralytics to allow his body to rest, to prevent his heart rate from accelerating and his blood pressure from de-celerating. He is receiving LOTS of meds and fluids but is not elimating well, so is starting to swell (common post-surgery complication) so we need to pray for fluid discharge. The fever is still dangerously high and he remains on ice. His chest x-ray is good, showing typical fluid but no clots or serious pockets of fluid or blood.

T&T are living the nightmare of the ICU (PCTU at this hospital) but are mightily serving others in need there while witnessing trauma and tragedy at every turn. Please pray for strength for them and that God will use them to comfort others yet shield them from the overwhelming horrors. Terri would like to be able to just sit with Corbin (requires that the ICU be open for her)and regain perspective. Please pray that God will grant her this desire.

The older boys are each being distracted by a variety of friends today and I am being supported by some very faithful saints.

To God be the Glory for ALL He has done and will do. Thank you for your prayers and caring. I'll post when there is more news or significant change.
We pray with thanksgiving.

GrandPenny



April 13, 2006 at 10:38 PM EDT
Thank you for faithfully praying for Corbin and for all acts of kindness. In particular, I am aware that Amy and Becky have returned to the PCTU waiting room late this evening to support T&T -- that is huge!

Corbin is very sick. There is no other way to put it and this will be a very long night. Please, do not grow weary of praying, I humbly ask. Your messages are so helpful and encouraging and your prayers hold us up. If I go through the list of problems, drugs, treatments and hypotheses, you would only be overwhelmed. Corbin is in critical condition and many improvements need to happen quickly, but let me share his mother's words. "Corbin looks good. I feel he's getting better. He looks in my eyes and squeezes my hand and seems peaceful." Terri says she is calm and confident. God is at work for Corbin and in all things -- Travis is sitting in the waiting room comforting and praying with others. Lattany and Coach are praying in Mexico, David is praying in Ireland, around the country, around the world, let us lift up the name of the Lord, that He be glorified THIS day.

I will continue to update when there is news. It's hard being 1000 miles away, but I praise God for telephones and for those who can be there to hug T&T. Praise God for His church which has rallied in support of my family this day, so that I have not been alone and the little boys have been well cared for despite my need to be on the phone and in conversation or prayer most of the day. Praise God in ALL things!

Specific prayer requests: That Corbin's blood pressure stabilize, that his fever diminish, that no damage results, that he is comfortable, that he continues to eliminate fluids well, that the chest tubes can be unclogged without being replaced, that the blood loss will diminish, and that God will sustain him through the night with new mercies in the morning.

Love and thanks to all, GrandPenny


April 13, 2006 at 04:26 PM EDT
Let us not grow weary, but Rally to prayer!

We need to return to pray with rejoicing. Great things have been done but Corbin is struggling and we must lift him up continually for healing and strength.

There was considerable delay in "getting him up" to the PCTU but T&T were able to see Corbin very briefly before shift change. However, they are now being kept out and have found it a scarey situation, reminding them of past difficulties when they could get no news. God is in control and knows exactly what Corbin needs. May He grant Corbin healing and strength.

There is lots of bleeding, drainage from his 3 tubes and he's been given lots of blood products, platelets and near the maximum blood pressure meds.

Please continue to pray that Corbin's blood pressure would stabilize, that the bleeding would get under control and that Travis and Terri would feel the peace of the Lord. May God be Glorified in our prayers for Corbin.

Good news was that when Terri spoke to Corbin he immediately responded with lots of movement, so they had to sedate him again. His oxygen saturations are excellent but he's on full ventilation and his color is very grey.

I'll update again after T&T are allowed to see Corbin.
GrandPenny



April 13, 2006 at 01:20 PM EDT
Give thanks to the Lord, for He is GOOD, His love endures FOREVER!

I'll have to find out where those surgical nurses were stopping on their way to give updates! Although we were told at 11:30 that Corbin was just onto the pump, with the procedures and fontan yet to begin, at 12:30 Dr. Ohye was in the waiting room and DONE! Terri says he was all smiles and says things "couldn't be better".

Specifics: They augmented the RPA, left the LPA alone, augmented the SVC stent and removed his shunt. They completed the fontan pathway and were doing an echocardiogram to check heart function. His blood pressure (BP) and heart rate were fine and Dr. O indicated they would be closing the chest (sounds confident of success).

Praise God and thanks for the prayers AND visitors! T&T had so many visitors that the time flew by and it was a treat to see so many "heart" friends.

One big hurdle is past, but the long road of observation and recovery begins. We'll update again this evening, when Corbin is into the PCTU and we know the specific needs. Short term we must pray that his body will tolerate the new circulation. Long term, we know that removing the ventilator, resolving pleural effusions, and stabilizing vital signs and meds are some of the hurdles in the road to come.

Thanks for your prayers.
Praising God for His goodness and mercy. May He be glorified THIS day!

GrandPenny (thankful for helping friends here this afternoon -- I need a nap!)



April 13, 2006 at 11:29 AM EDT
I'm thankful to have heard from T&T AND my family on mission in Mexico. My daughter, Lattany, was able to carry the good news of cath results and surgery plans back to the team prior to the end of their morning worship. I'm glad I was able to speak directly with her this morning as her daddy's transfer of information had her really confused :)! The Mexico missions team is doing well and continues to pray and rejoice with us from the orphanage where they are serving.

As of 11 am, the surgeon was just beginning to open Corbin's chest as it took a LONG time to gain IV access. Corbin's veins are never easy. After getting through the scar tissue, they will get him hooked up to the pump/bypass to begin the fontan procedure. So we still have a long way to go and it may be late afternoon before there is more news.

Thanks for your patience and prayers.
Terri and Travis have Pastor Mearl (met him at the hospital when Corbin was born) and Terri's sister, Sherri, waiting with them. They are especially thankful for Colleen S and Jennyce's goodie bags of food, since they've not been able to get out for meals at all yet. We thank God for each of you.
Keep praying and expecting miracles!

GrandPenny

GrandPenny


April 13, 2006 at 09:43 AM EDT
God is paving the way.

Corbin was taken back for surgery at 8:45 am, which is rather late for "first case" except that he is also Dr. Ohye's ONLY case today. It takes considerable time to get through all the scar tissue, connect him to bypass, etc, so we're not sure when we'll get an update, but Dr. O expects the surgery to take until at least 2 pm.

Dr O spoke with T&T yesterday afternoon confirming that the cath indicates perfect pressures and significant growth in the SVC and PAs -- direct and specific answers to prayer! In addition to the fontan surgery, Ohye will cut across and enlarge the stent in the SVC to accommodate the growth and may augment the RPA. He suspects that the shunt (the modification to Corbin's hemi-fontan surgery) is no longer working and may be removed, which is a big surprise.

Corbin recovered from the cath and was given a "pass" to stay at RMH last night. Just recovering completely from a cath is significant and we are so thankful! However, when he spiked a fever, they brought him back to the floor to make sure he responded to Tylenol and was observed. As I recall, Corbin always runs a fever after every procedure -- guess his body knows how to fight!

Please pray for precision and safety as they work to re-open Corbin's chest -- it takes a LONG time and is one of the trickiest parts of the whole process; that he transitions on and off of bypass safely; that Dr. Ohye has clarity and precision in his repairs and thoroughness in observation and attention; that Corbin is protected from human error and infection; and that Terri and Travis feel God's peace as they wait.

Praise God for each one who is praying on Corbin's behalf today -- especially YOU! I understand the Mexico Mission team (3 of my family are there)and the SGC Brigades have prayed corporately as well as hundreds of others around the world. Nearly 800 follow this carepage alone, plus all the family and church prayer chains throughout. We thank God for every prayer. God commands us to pray for one another and His blessings in return are immeasurable.

Please also pray for my family on the Mexico Mission. I am concerned that I have not heard from them, although they are very aware of the cath and surgery schedule. May God give them peace and contentment while they are away from the news and information regarding Corbin. I pray that God will find a way to let them contact me. We are thankful for the many who have offered support to T&T in Michigan and those helping me in Va -- including dear friends coming to be with me today -- it's so hard to wait, but God's timing is perfect!

May God be Glorified THIS Day. We praise Him for all that He has done to prepare Corbin for this surgery, recognize and rejoice in His miracles and anxiously await even more evidences of His sovereignty and grace!

GrandPenny



April 12, 2006
God's Love Endures Forever, Sing Praise!

Ok, this is my third attempt to complete this message (I'm a technological imbicile) so I hope I get it all in again.

Corbin is safely out of the cath lab and in a room on the 5th floor. He is still asleep and may be given a pass to spend the night with his parents, unless the lines need to stay in for tomorrow's surgery. YES, surgery will proceed tomorrow. The entire cath took only 2 hours and Terri said "the doctors wore the biggest smiles. Corbin looks beautiful." No one wants to see their child go to open heart surgery, but since we know it is inevitable, for him to grow and thrive, we're rejoicing that he is ready.

Remember our prayer requests?
In order for Corbin to have this surgery he needs:
Tricuspid Valve to be working with no more than "mild to moderate" leakage. IT'S MINIMAL
Pressure in his pulmonary arteries to be lower than 15. (last check was 22 to 25!) THEY ARE 11 & 12 !
Pulmonary arteries to have grown FORGOT TO ASK, BUT ASSUMING SO
Superior vena cava to have grown to accept more blood flow. FORGOT TO ASK, BUT THE STENT WILL NEED TO BE AUGMENTED, CUT OUT OR REPLACED
To remain healthy and infection-free prior to surgery, including strong by eating well! YES, YES, YES

How kind of our God to provide evidence of His work and reassurance for the days to come. I will post as surgery proceeds tomorrow.
May God be glorified THIS day,
GrandPenny

April 11, 2006

The Grace of God is with the Grabb family.

Corbin and parents had an uneventful drive to Michigan and a real treat visiting and staying over with heart friends Halle and Amy, before reporting to Mott Children’s Hospital on Monday. Halle, who had her Fontan surgery recently, was such an encouragement to Terri and Travis – hopefully to Corbin, too!

Check-in day was uneventful except “no room” at Ronald McDonald House (RMH), so they stayed in the hospital hotel, Med Inn. It’s VERY nice but far more expensive, so they were relieved to get to move to RMH this afternoon. I will apologize in advance for any errors or confusion in my messages. I will be getting the information “second hand” and trying to process it from medical to layman terms.

Today Corbin had a sedated echocardiogram, chest x-ray and blood tests. He was not happy about not being allowed to eat or drink and went from “pleading” with every sign he knows, to big sad tears, to outright anger, and was hysterical by the time they reported for the echo. How sad that they work for over a year to get him to eat, he just becomes an independent eater and then they won't let him eat! The sedatives worked, however, and he was still sleeping it off hours later.

No “official” news, but T&T watched the echo and know that bloodflow through the stent is great and there is only “minimal” tricuspid valve leakage (as opposed to moderate previously). The doctor could not get a look at the Right Pulmonary Artery (RPA) nor the shunt, so they don’t know the size or condition of the RPA, but they know by stethoscope that the shunt is open and working (and because his oxygen saturations are still low). There is a new issue and that is the inominate vein (feeds the lungs) is occluded and Corbin’s body has made “collateral” veins in order for the blood to have somewhere to go. That’s apparently why his left chest is blue, so they will do a contrast study as part of the heart catheterization (cath) to figure out where his blood is going and the condition of the vein and collaterals.

His coumadin (blood thinner) levels are optimal for tomorrow’s cath and upcoming surgery. The cath will be Wednesday, late morning (2nd case) and he may be admitted to the unit at that time to leave the lines in for Thursday’s surgery. T&T don’t expect to see Dr. Ohye (surgeon) until just before surgery and Corbin is his first and only case that day. Last May, it was 6 am when Dr. Ohye entered in his suit (not scrubs), that they first found out there would be no surgery. So they may not know the “plan” this time until the last minute. Tomorrow’s cath will determine the course of Thursday’s surgery.

Gunnar, Aiden and Brodie are doing great and we’re staying very busy from playgrounds to lessons, painting, trampoline, scooter rides, books and even learning some new handcrafts. Please refer to the earlier specific prayer requests posted and know that we sincerely appreciate your prayers for Corbin’s healing, treatment and recovery.

May God be Glorified in ALL things THIS day.
Until tomorrow,
GrandPenny

April 9, 2006

Terri, Travis and Corbin left early this morning to drive to Ann Arbor. They hope to make the trip in one day, but that will depend upon Corbin's ability to be still!

When they dropped off the other 3 boys last night, I must say that Corbin is definitely at his best. Happy, playful, active, no oxygen, eating fully on his own, no developmental delays. As I gave him my "instructions" (to be content, but not too content -- to do his best to come home very soon), he looked at me and nodded. So very many people have prayed for him and over him in person, that I really believe he understands.

Terri and Travis have done a phenomenal job preparing for this trip, only by the grace of God. Its anticipation is overwhelming, but their strength is apparent: "for when I am weak, God is strong."



The schedule for Corbin 's Testing and Treatment is as follows:

Sunday, April 9 - Travel by car to Ann Arbor, Michigan.

Monday , April 10th - Check into the Ronald Mc Donald House or MedInn, hospital paperwork, and meet with hospital Social Services.

Tuesday, April 11th - Blood work, EKG, Sedated Echocardiogram, Chest x ray , Check up with Cardiology and Gastroenterology.

Wednesday, April 12th - Heart Catherization (although Dr. Ohye is now suggesting they skip this part)

Thursday , April 13th - Open Heart Surgery (Fontan Procedure)

Our prayer requests for Corbin and family:

In order for Corbin to have this surgery he needs:
Tricuspid Valve to be working with no more than "mild to moderate" leakage.
Pressure in his pulmonary arteries to be lower than 15. (last check was 22 to 25!)
Pulmonary arteries to have grown
Superior vena cava to have grown to accept more blood flow.
To remain healthy and infection-free prior to surgery, including strong by eating well!

We ask you to Pray that:

The family travels safely, without incident, to Michigan.

That all logistical details of lodging, etc. will fall into place.

Corbin would not have difficulty coming off of the ventilator after the surgery.

He will not be frightened by the doctors, nurses and staff as he undergoes dozens of tests, blood draws, IV’s and procedures.

They are able to gain access in the only two arterial sites available for his heart catherization, without having to go through his liver, which increases the risks of infection and involves a very painful recovery.

He will not have trouble with fluid accumulation in his lungs and heart during the recovery, as he did last time.

Corbin can stay infection-free during his days in the hospital.

Corbin’s body will be able to handle the change in blood circulation by the surgery and allow the doctors to close his chest upon completion of the surgery.

Corbin is protected from human error and handled gently and skillfully by all hospital staff.

Gunnar, Aiden, and Brodie will not be fearful during this time and will feel God’s love as they are at GrandPenny's.

Penny (Travis’ mom) will not have any problems caring for the boys and her health will remain well, especially during the first week when most of her family is on a mission in Mexico. Layna will be home helping her.

Travis and Terri will feel confident in their decisions for Corbin’s care. That they will feel God’s leading in all decisions.

The many families, doctors, nurses and staff they meet will see them as a light and they will Glorify God in ALL things.

Praise God for those who've helped Terri prepare and offered to help me also.Thank you for your care and prayers! We expect many miracles.
GrandPenny

Preparations Underway

We are all doing wonderful. Preparing for the big adventure in Michigan with Corbin. We have a duffel bag of toys packed to try to keep him happy and busy in the hospital. I made a board book for him of his family, favorite things, and his signs for him to look at and for the nurses to use as well. I also completed his medical care notebook with all his surgical history and growth history from GI as well. It has everything imaginable in it. If anyone needs suggestions about putting one together send me a note and I will help. We have the other boys all packed up and ready for Grand Penny's as well. Now, I am just staying busy to not worry about what is to come. Today I cleaned out my closet and found size 4 jeans!!! It has been YEARS since I have worn that size! Needless to say they are no longer in my closet!

We had a beautiful prayer meeting for Corbin last week. I can't thank everyone enough for their support and encouragements. We feel so blessed. Emotionally I think everyone is doing very well. At times their are moments when you get a flicker of fear but God has been so good in giving us amazing friends to hold us up and remind us to not be fearful but trust in God. For those that could not attend the prayer meeting but would still like a prayer pin please contact me through email and we will get you one.

God Bless

Spring!!!

We just love the warmer weather. The boys are all doing great. We just celebrated Gunnar's 7th birthday! It is hard to believe that he is growing into such a young man so quickly. He received his ultimate gift! A motorcycle! Yes, that is right I was only able to hold Travis off until he was 7! He actually did great after a few falls began riding like he had done it all his life! We were all amazed. He still had a few problems with the brakes and ran into the playground slide once but overall did fantastic.

Corbin is doing very well. He did start last night with a croupy cough but we are praying that he doesn't start into something. We have four short weeks before our adventures at the U of M start up. Corbin is still having trouble drinking and we are using the pump full time to keep him fed. We are praying that after this next surgery he will pick back up and we can get him off the tube for good.

We have posted pictures of the past two months, click on the title and it will take you to shutterfly to view the phots! Enjoy

If you have trouble I posted the address so you can cut and paste it in your browser window.

Love
The Grabbs

http://grabbfamily.shutterfly.com/action/

Crazy things kids say and do!

Gunnar was walking around the house and Travis asked what he was listening to Gunnar replied "Jesus!"

Aiden was talking with Jennyce our Monday helper and told her that he was also having teeth troubles. His were falling out because he was getting to old!

Brodie was sitting on the couch with me and started crying because "God made his feet stinky!" It was hard not to laugh as I comforted him and explained that feet do get stinky in socks and shoes all day when you are a sweaty boy!

Corbin has officially earned his Doctorate in Teasing! As we corrected him for hitting Brodie. He then tried just to lightly hit, then corrected again. Which then he tried to poke at him, so we corrected him AGAIN. Then he proceeded to almost poke him. We were laughing at how smart he was and advanced his teasing skills are. When Travis walks through the front door he always announces his presence loudly. Corbin replies "MAMA"! Travis is convinced he is doing it now to tease him.

As for an update on us, we are all feeling much better. Corbin has fallen into a routine of accepting 5 ounce bolus feedings four times a day. This is a HUGE step for him. He does get sick on occasion but overall seems to do well for them. He is gaining weight well on this new plan. We realize now that, Corbin was not drinking nearly enough on his good days to stay hydrated. He has a long ways to go but something we will not worry about now. He still only says Mama to everyone, but is now imitating some signs. He did say the op sound the other day so we are getting some other sounds.

We posted new photos of the Corbin and the boys from the warm weather outside. Brodie is to funny as he sits in the sled. Not really understanding why it doesn't work without the snow. Corbin loves all being outside but did not like touching the grass when he falls. He also had his first taste of sand from the sandbox. I am sure that is not his last.

Hope all have a wonderful week and God Bless.
Terri and Crew

Crazy Weeks

We had a few crazy weeks here lately. Corbin became ill with the Croup which began the round of illness. We then had a virus begin which is when Corbin stopped drinking or eating. We then realized his g tube site was not working and was actually infected. Then we had Brodie who begin feeling ill and go into breathing problems requiring nebulizer treatments. Then to add more fun to the entire crazy weeks Travis was out of town during part of this time. Yes, it really was that crazy and at times I was not sure if I was coming or going.

Things are much better now and we are happy to report that everyone is well once again. We are feeding Corbin with bolus feedings after learning that he was not receiving adequate liquids to keep him hydrated even on the best of his eating days when he was well. He is up to 4 ounces at a time. We have changed him to neocate 1 plus which is 30 calories an ounce. Today he went into the peds office and received his synergis shot. They asked that I bring in his oxygen as he "scares them" according to the nurse. So off we went today, weighed in at a whopping 22 pounds! Yes, according to their scale he gained a pound and 12 ounces this past month. What fluids, some extra calories, and bolus feedings can do for a guy!

We topped off our crazy week with dealing with a three year old that is still fighting enemia and VERY whiney! After putting on his socks to leave for the doctor three times he was placed into the car without socks or shoes. Rushing off and Grand Penny watching the boys in the car while I helped hold Corbin down for his yucky shot, I forgot my purse. Then having to drive all the way back home to get my purse to then go and find a fax machine to fax off Corbin's prescriptions a second time as they did not get enough information the first time. Only to have the fax not go through after five attempts. We then went on in our errands to try to replace Brodie's glasses after having them only a little over a week they are already broken. Unfortantely they were to busy today to see us even though I did call ahead and so we did not get them fixed. So after spending three hours out with four children, all not really wanting to be going from store to store, I finally gave up and came home. Another day without making it to the grocery store! Just did not have the energy to face that after such a frustrating morning. We did accomplish one thing today. Corbin had his speech therapy today! Crazy weeks and Crazy days! I know that there will be many more crazy days and weeks to come.
God Bless from the Crazy Grabb Family

Mary Catherine one of Corbin's wonderful nurses came for the weekend. We had a great time. Did lots of shopping, decorated the boys room finally, and spent lots of time playing with boys. The boys really love Mary Catherine and love all her visits. Brodie asks every day when she is coming back to play some more. Thank you Mary Catherine for the great visit. We love you!  

Mary Catherine came to visit. We had a wonderful time. Corbin enjoyed many new tastes such as wipped cream. Not sure how many calories there are but he sure loved it.  

Broken Hearts

As we entered into the world of CHD never did we dream we would have to watch so many of our friends lose their children to this disease. We are really heart broken for them. It is hard to understand or imagine what they are going through. Yet also what comes to mind is that it just as easily could have been Corbin. I am not sure why we are the ones who are blessed but try to always remember that each moment each day is so very special and treasure each moment.

As we grieve over the loss of our beautiful heart friend Loghan. We also have to plan Corbin's next surgery. For now our date is April 13th. We will arrive on April 10th, have preop on the 11th, and the Cath is the 12th. Surgery will be the 13th.

For now we enjoy each moment and try to forget what looms ahead.

Terri and family