Wednesday, December 14, 2005

Family Vacations

We made it back from vacation. Gunnar, Aiden and Brodie said it was the best vacation ever. We all(except Corbin) really enjoyed the water slides. Gunnar's favorite was the family slide that all could ride together on. Aiden loved the large water pail dumping on him in the fort. Brodie loved sitting on the beaver in the pool. There was lots to do. Corbin's favorite was the cub club play area. He learned how to climb the steps and slide down the slide by himself while we were there. We even spent a day visiting our family in Virginia Beach. They were able to meet Corbin for the first time and we met three of our cousins that were born since we had last gotten together.

As far as Corbin's health, he is doing very well. He has a weight check and synargis shot on the 22nd at the pediatricians office. He is doing much better on the neocate and his bloody stools are all cleared up. We have removed all his GI Reflux meds except the miralax. He is doing wonderful without them. He is on only five different heart medications. What a difference from 1 year ago! We do not see the cardiologist until February! We see the GI Doctors in early January. So we are beginning to slim down to once a month doctor appointments. Life is definitely getting easier here!

We are beginning to gather together our questions we need to ask about the next procedure for Corbin. So fellow heart mom's that have gone through the Fontan please feel free to give us your input. At Corbin's last Catheterization at 1 year, his pulmonary pressures were still in the 20's, with a shunt and on 1 liter of oxygen. (for the non heart community it is best to have them below 14) It is our understanding that the pressures are the biggest reason for failed fontan's so please give us any input and medical references so we can ask and research where we need to go next with Corbin.

Thank you for your support to our family. We are enjoying the wonderful season. We feel really blessed to have another opportunity to celebrate our Savior's birth as a family and at home once again. Please say a prayer for the many families that are in the hospital and have lost a loved one this year, as we pray they will especially feel God's love and care for them.

May you all feel God's love on this glorious day.
Terri and Family

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